The social stigma associated with cleft conditions makes it difficult to identify patients and connect them to appropriate care.
The objective of our Cleft Registry initiative is to improve decision-making in the selection of medical mission sites and increase understanding for policy making around cleft care. This is done by sourcing data about patients with untreated clefts from users of the Operation Smile mobile app and leveraging that data to visualize cleft prevalence in real-time.
Through mobile technology and community-based partnerships, the Cleft Registry initiative can help catalyze new tactics and strategic support in a way that systematically combats the backlog of untreated clefts in the Philippines.
App is available for free download in IOS AppStore and google Playstore